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The strange boy hung at a 180-degree angle, everyone burst into tears 7 months after the surgery
January 01 2019, 9:48 AM
An Indian boy with congenital myasthenia gravis causes his head to rotate 180 degrees.

A 13-year-old boy in India whose head was hanging at a 180-degree angle has passed away just eight months after life-changing surgery to fix it.

Mahendra Ahirwar, who suffered from a rare condition called congenital myopathy which made the muscles in his neck so weak his head would hang, had been absolutely fine in the morning.

His mother Sumitra, 36, said he had his lunch on Saturday, lay down to watch TV and at around 3pm passed away.

Dr Rajagopalan Krishnan, who completed the surgery to straighten his neck in February this year, said he was left shocked by his sudden death.

He said: ‘I can only conjecture that a massive cardiac or pulmonary event might have occurred and often there are no premonitory symptoms in such cases. I think myopathy and poor chest muscles caught up with him in the end.

‘He was among the bravest children I’ve seen since my return to India and I see the most terrible and neglected deformities.’

Dr Krishnan said: ‘For me, the joy and smile on his face when his head stopped sagging was one of the defining moments in my decision to operate on children with neglected and awful spinal disorders.

‘I am sure his absence will cause anguish to everyone who was involved in his care, his smile was brighter than the sun after his neck was straightened.’

Cha của cậu bé, anh Mukesh đã từng chia sẻ với báo chí: “Tôi cũng có một mong ước đó là đứa con của mình được đi học, hi vọng sẽ có phép màu xảy ra”.

Today Mahendra’s father Mukesh Ahirwar, 42, and his mother Sumitra spoke of their devastation.

Sumitra said: ‘I had so many plans and dreams for him. I wanted him to grow big. He dreamt of opening a general store and we were going to help him. His dreams are shattered now.

‘He’d been playing in the morning, had breakfast, took a shower and took a ride on his wheelchair inside the house. After having lunch, he asked to watch TV. I switched on his cartoon, and he coughed twice.

‘He asked me to rub his chest and then tried a third cough but died. I started crying loudly and called his name. I ran outside, I kept shouting “my son isn’t moving”, and a neighbour phoned the doctor. The doctor came within 15 minutes and declared he was dead. I fell to the floor and held him tightly. I didn’t want to let him go.’

The family cremated Mahendra in a traditional Hindu ceremony at the weekend, surrounded by 25 friends and family.

Sumitra, who has two other sons Lalit, 17, and Surendra, 11, as well as daughter Manisha, 14, who was very close to Mahendra, added: ‘His things are scattered everywhere.

‘Our house is filled with his belongings. Nobody thought this day would come. He was fine. He even said “I’m absolutely fine Mum”. His voice echoes in my ear. The way he used to call me. I am devastated. I feel everything is over.’

Mahendra was overwhelmed with appreciation when he was given the opportunity to have his neck straightened earlier this year.

Sumitra said: ‘My little son had the privilege of meeting foreigners and good people. He was treated by the biggest doctors in this country. For him, seeing a different city was like seeing a different world.

I will miss him. I’ve no idea how I’ll cope with the loss. He’s with God now. I hope he is able to find peace. He’s had a painful life. I hope wherever he is, he is pain-free.’

Source: Daily Mail

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